We provide information to enable people living with cystic fibrosis to access affordable modulator medicines
Vertex Pharmaceuticals have charged such high prices for their cystic fibrosis medicines that they are unaffordable for health systems and individuals in countries all around the world. Thousands of patients have been excluded from treatments that could transform their lives. We think this is unacceptable.
We provide information that allows people living with cystic fibrosis to access more affordable, but quality-assured generic versions of modulator medicines including ETI, elexacaftor/tezacaftor/ivacaftor (Vertex brand name Trikafta or Kaftrio).
Many countries around the world have legal exemptions allowing the purchase and import of medicines for personal use. Through so-called buyers’ clubs, thousands of patients affected by a range of conditions have accessed quality medicines at a fraction of the price demanded by the patent holder company.
In October 2025 details of a new generic version of ETI were announced. The prices of this new product from Beximco Pharmacueticals, a generics manufacturer based in Bangladesh, are dramatically lower than Vertex’s list price, and also significantly lower than generic ETI available from Argentina. If you are interested in buying medicines or would like further information please fill in the form below.
For more information please read the CF Buyers’ Club 2.0 Handbook.
