The CF Buyer's Club would like to announce that we have formed a partnership with the amazing children’s charity Tree of Hope.

As a group of parents we understand how difficult raising funds can be, even at generic prices. We know that self-funding a generic is an option unaffordable for the vast majority of people. With this in mind we have been working on a number of options to help support Buyer’s Club members in covering the costs involved - partnering with this experienced charity is one such option.

By fundraising with Tree of Hope families can get the benefits of their registered charity status, which can help to boost funds through gift aid (please see the Buyer's Club Facebook group for more details). Alongside this TOH offer a unique support service and advice and will work closely with us at the CF Buyers' Club and with Breathe With Me Strawfie Challenge to raise media coverage, which we hope will help to increase donations.

Today Tree of Hope are also launching a Cystic Fibrosis Fund, where donations not linked to a specific individual can be made to. This has its own "text to donate" number and this week we are releasing some videos on social media with Tree of Hope to encourage donations, using the hash tag #Hope4CF. The first of these is here:

We now need your help! Please share these videos far and wide from our Facebook and Twitter pages. You could also film a short video yourself, or challenge other parties to. We are looking for people in the workplace, schools, groups, choirs, brownies, scouts, sports teams, or individuals; anything goes:

The more people that can get behind this the better the chance of success, both in terms of raising funds and of course pressurising the government to find a more equitable solution for all. So get sharing and get creative, let’s have a little positivity and #Hope4CF !